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SMA Charity Skydive 2012

Postedon 9th May, 2012 in News

SMA Charity Skydive 2012

SMA Charity Skydive 2012

Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing.

  •       SMA is the #1 genetic killer of children under the age of 2.
  • One out of 40 people, most unknowingly, carry this deadly gene.
  • One of every 6,000 children born are affected by SMA.
  •  There is NO CURE however, with funding for research; SMA is the most likely genetic disease to be cured in the next 2-4 years. A cure might not restore lost functions, but will stop further regression.

I am taking part in a tandem skydive in order to raise money for sufferers of SMA. All funds raised will be split between The Jennifer Trust (who support families and sufferers and raise awareness of SMA registered charity no 1106815) and helping to contribute to Elise’s new wheelchair. Elise is 6 years old and is terminally ill, she suffers a debilitating condition called SMA type 2, which leaves her very weak, vulnerable to infections and unable to walk. Despite this she has a passion for life and loves the opportunity to get out and about. To enable her to maintain her independent mobility she needs a larger motorised wheelchair (as she calls it her whizzy chair.)

I will be completing my skydive on Saturday 18th August 2012 at Dunkeswell Airfield near Honiton.  Please give whatever you can to support my tandem sky dive.

Donations can be made online at http://www.justgiving.com/vic-x

Donations by text can be made by texting VIXS52 and your amount e.g £5.00 to 70070

Or contacting Vicki direct at vicki.smith070791@gmail.com

SMA adult wrist bands can also be purchased for £2.00 by emailing the above address.

 

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